Undiagnosed Disease Network (Duke)
A network of medical centers across the United States that is focused on the identification of mysterious conditions that have eluded a diagnosis. This network also establishes cooperation between researchers and clinicians to solve medical mysteries through team science.
Rare Diseases Community Resources (NIH)
NCATS offers free materials and resources to help patients, health care providers, scientists, etc. to learn about rare diseases and help advance research on them.
A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through education, advocacy, research, and patient services.